Your rights

When you participate in the Québec Health Record (QHR), you have rights:

Right to refuse

The Act respecting the sharing of certain health information This hyperlink will open in a new window. stipulates that “Every person receiving health services or social services is presumed to have consented to the release of his or her health information through the Québec Health Record, unless the person has expressed refusal”.

Indeed, you may, at any time, refuse to allow your health information that is held in QHR information banks to be released to authorized providers or bodies.

A refusal does not, however, prevent your health information from being collected in QHR information banks. Furthermore, despite the existence of a refusal, by law, health information in the medical imaging domain can be released to medical imaging specialists when one of your medical imaging examinations is interpreted.

When you exercise your right to refuse, you can:

  • Refuse to allow all the health information about you in QHR information banks to be released through the QHR
  • Refuse to allow all the health information about you that was collected before a date that you determine to be released through the QHR
  • Modify your refusal
  • Withdraw your refusal

Your refusal will in no way imperil your right to receive the care and services you required by your state of health.

Right to refuse: minors and incapacitated adults

The refusal of a child who is under 14 years of age or of an incapacitated adult must be made by the holder of parental authority, tutor, curator or mandatary of the person.

Exercise your right to refuse

You can exercise your right to refuse by using one of the following methods:

If you express your refusal by Internet or by telephone, you will be provided with a confirmation number immediately. If you express your refusal by mail, written confirmation will be sent to your last known address held by the Régie d’assurance maladie du Québec (RAMQ).

Right to access information

The Québec Health Booklet does not require you to submit an access to information request. It allows you to consult some information in the QHR online, such as your medication history, medical imaging examination reports and sampling results. To find out more, go to the Québec Health Booklet This hyperlink will open in a new window. page.

Anyone can obtain a copy of their health information held in QHR information banks, excluding their unique identification number (UIN).

Furthermore, since each time an authorized provider or body consults information in the QHR, his electronic signature and the action performed are automatically recorded, you can also request a list of providers and bodies that accessed your information.

In both instances, you must send the duly completed Access to Information Request This hyperlink will open in a new window. form to the person in charge of access to information at the Ministère de la Santé et des Services sociaux. Your request must be accompanied by a copy of a valid identity document with a photo and signature. Administrative charges may apply.

The person in charge of access to information must process your request to access your health information within 20 days of the date of receipt. The person in charge may extend this deadline by a maximum of 10 additional days by providing you with advance notice by mail. For a request to access the list of authorized providers and bodies that consulted your information, the person in charge of access to information must respond within 45 days of the date of the request is received. The person in charge may extend this deadline by a period not exceeding 15 additional days by providing you with advance notice by mail.

Following the decision of the person in charge of access to information, a request for a review may be submitted to the Commission d’accès à l’information This hyperlink will open in a new window..

Right to access information: minors and incapacitated person

A minor who is under 14 years of age may not be informed of the content of his health record or obtain a copy of his health information. However, a request may be completed by his father, mother or tutor. Nevertheless, if a director of youth protection determines that the release of any or all of that health information causes or could cause harm to the child’s health, the right to access may be denied. A minor who is 14 years of age or older may submit a request himself. He can also consent to the holder of parental authority or tutor receiving a copy of his information. In this case, his consent must be included with the access request.

The access to health information request of an incapacitated person who is 14 years of age or older and who is placed under protection must be completed by his tutor, curator or mandatary.

Right to rectify your health information

If you notice that some of your information is inaccurate, incomplete or equivocal, you have the right to request that it be corrected.

To do this, you must send the duly completed Request to Rectify Information This hyperlink will open in a new window. form to the person in charge of access to information at the Ministère de la Santé et des Services sociaux. Your request must be accompanied by a copy of a valid identity document with a photo and signature.

The person in charge of access to information must process your request within 20 days of the date of receipt. The person in charge may extend this deadline by a period not exceeding 10 additional days by providing you with advance notice by mail.

Following the decision of the person in charge of access to information, a request for a review may be submitted to the Commission d’accès à l’information This hyperlink will open in a new window..

Right to file a complaint

You have the right to file a complaint about the Québec Health Record. Any failure to protect your health information may be the subject of a complaint and lead to an inquiry being conducted by the Commission d’accès à l’information. Your complaint must be specific and state your objectives.

To exercise this right, you must send the duly completed Complaint This hyperlink will open in a new window. form to the person in charge of Coordination centrale de la gestion de l'information de santé DSQ at the address indicated on the form.