The Act Respecting End-of-Life Care offers a comprehensive and integrated approach to these care. It promotes access to quality care in order to prevent and alleviate the suffering experienced by some people.
End-of-life care includes palliative care, which encompasses continuous palliative sedation, and medical aid in dying, as well as advance medical directives.
Rights of a person receiving end-of-life care
Respect for the person and recognition of their rights and freedoms should guide every action taken toward them. A person must at all times be treated with understanding, compassion, courtesy and fairness, and with respect for their dignity, autonomy, wishes, needs, and safety. Furthermore, members of the care team responsible for a person must establish and maintain open and honest communication with them.
Rights to receive end-of-life care
A person has a right to receive the end-of-life care required by their health status and to have access to quality care in accordance with their needs, particularly to prevent and relieve their suffering.
End-of-life care is provided in institutions in the health and social services network and in palliative care hospices. It can also be administered at home. Every institution or palliative care hospice must have a policy on end-of-life care that specifies the nature and scope of the care available on their premises.
Institutions in the health and social services system must provide every person receiving end-of-life care with a private room for the final few days preceding the person’s death.
Medical aid in dying
Medical aid in dying is a care that consists in the administration of medication by a competent professional (physician or specialized nurse practitioner) to a person, at their request, in order to relieve their suffering by hastening their death.
The Act Respecting End-of-Life Care allows two types of requests for medical aid in dying, namely, a contemporaneous request and an advance request.
A contemporaneous request for medical aid in dying is made to receive the care in the short term.
An advance request for medical aid in dying is made to receive the care after the person has become incapable of giving consent to care due to a serious and incurable illness leading to the incapacity to consent to care (e.g., Alzheimer's disease).
No one other than the person who wants to receive medical aid in dying may request it on their behalf. Furthermore, to receive aid, the person must absolutely meet all the criteria set out in the Act Respecting End-of-Life Care.
Right to refuse or stop a care
Any person, whether at the end of life or not, has the right to refuse a care or to request that a care be stopped. For example, they have the right to stop chemotherapy or refuse surgery. Refusing or stopping treatment does not affect the person's right to receive end-of-life care.
Right to be represented
To receive care, any person must freely give their informed consent to health or social services professionals. When a person becomes incapable of giving consent to care, they can no longer make decisions regarding the care that health status requires. In this case, someone else may consent to care on their behalf. This someone can be their legal representative (mandatary or tutor), a close relative (such as a spouse), or a person who can demonstrate that they have a particular interest in them. Under all circumstances, this person must act in the person’s best interests and, to the extent possible, comply with the wishes that the person expressed when they were capable of doing so.
People requesting medical aid in dying cannot ask others to represent them for this care.
Right to express wishes for care
Any person, whether at the end of life or not, has the right to express their wishes for care in the event of incapacity to consent to care. They can do this by:
verbally informing their close relations of their wishes for care
writing a living or biological will
writing down their wishes on a sheet of paper, dating it and signing it
recording a video in which they express their wishes
making a protection mandate
expressing their wishes in a discussion with a physician, who will record them in a levels of care and cardiopulmonary resuscitation form
However, a request for medical aid in dying cannot be made by these means. A request for medical aid in dying, whether it is a contemporaneous request or an advance request, must be made in accordance with specific requirements and using the form provided for this purpose.
The person and their close relatives can, at any time, file a complaint regarding care or service received in the health and social services network with the local service quality and complaints commissioner, or regarding care or service received from a physician outside the health and social services network with the Collège des médecins du Québec. Complaints relating to end-of-life care will be dealt with as a priority.
Commission sur les soins de fin de vie
An organization is responsible for overseeing medical aid in dying: the Commission sur les soins de fin de vie. Its mandate is to examine, in committee, all matters relating to end-of-life care and to oversee the application of specific requirements relating to medical aid in dying.
The Commission sur les soins de fin de vie is composed of 13 members appointed by the Gouvernement du Québec. These members represent health and social services professionals (physicians, nurses, pharmacists, social workers), jurists (lawyers and notaries), users of institutions, the ethics community, and institutions.
You can contact the Commission:
Commission sur les soins de fin de vie 2535, boulevard Laurier, 5e étage Québec (Québec) G1V 4M3